Welly Walk - Play Group

Recently we went on a little trip with playgroup, We went on a welly walk. Ceienna was set tasks to complete  and given a bag to collect items she had to find. The event went down well as there were lots there, it was a lovely autumn day just perfect not to hot not to cold. We took in the views of the beautiful surrounding countryside as we made our way to a lovely garden of a nearby house. The girls had a great time Ceienna off playing with her friends, Arrianna lapping up the attention and me enjoying a coffee and a natter with my friends before returning to school to pick up my main man.

Photo's From Our Family Photo Shot

You may remember earlier in the year we had a photo shoot down of our family here are a selection of my favorite photos. im looking forward to having these on display around our new home. 

Scavenger Hunt at Rhiwargor waterfall, lake Vyrnwy

 After nursing two poorly children for the last few days it was great to get out of the house with them loads better and ready for some adventures again. Kellyn and Ceienna took their buckets and we headed off on a scavenger hunt.

 We had a lovely wonder along the Rhiwargor waterfall trail, its totally beautiful here. We also got to try out Arrianna's Special Needs Buggy off Road. This suits her needs really well and i am very grateful to our friend for the buggy.

 Arrianna loves being out doors especially where she can watch tree's she gets very excited by them.

October Down Syndrome Awareness Month

Today is the Start of Downs Syndrome Awareness Month, I suggest to everyone to take 1 hour to research Downs Syndrome, Discuss it with Friends and Family or on Facebook. If you have questions please don't be afraid to Ask me. 

Its hard to believe Arrianna is now 7 months old, I look at her now and i don't see my baby who has Downs Syndrome, i look at her and i see her Beautiful as ever, i even have days now where i don't even think about Downs Syndrome. We as a family are very lucky Arrianna has coped well with her condition and every time Arrianna needs to archive another milestone she fights with sheer determination to succeed. Downs Syndrome effects Arrianna in a number of ways, She has very little upper body strength which means she is unable to support herself in a sitting position, When in her pushchair she can not sit up. She still had dried skin on her feet and struggles with her body temperature. This weeks heat wave has troubled Arrianna deeply as she has been getting very hot even when stripped off. On the other end of the scale when the weather is cold Arrianna will turn blue with cold. This week she has been unable to sleep making me a very tired Mummy, Being a single Mum i carry everything on my shoulders myself. As well as caring for Arrianna and my other Children i have a house to run. I am slowly learning i cant do everything but i think i manage quite well on my own.  I have done lots of work with Arrianna to get her to use her hands this she is doing really well now and is mastering control of her hands at the moment, Balls have been invaluable for doing this. I cant believe how lucky i have been to have Arrianna, Every morning i go to her Cot and every morning she greats me with a huge Smile.  Arrianna is well known for her Beautiful Smile and special baby talk. We are so lucky. Below are some Links where you can find out more about Arrianna's Condition.

http://kidshealth.org/parent/medical/genetic/down_syndrome.html

http://www.ndss.org/

Tanat Valley Parents and Carers Support Group September 2011 Meeting 2

The meeting this month was well attended once again. We even had some lovely new new members. We had a Good Chat about Autism and the effect of this on our Children and the family who surrounds them . We had a Guest speaker today from the Open University to introduce our members to the Openings Course provided by the OU and the Autism Course which is linked below.






Mean While our Special Babies were having lots of fun in the Creche. Arrianna had her first go at painting as you can see below.

http://www3.open.ac.uk/study/undergraduate/course/sk124.htm

Big Brothers Party

 This week was Kellyns Birthday, and Saturday we had a party with lots of friends and family invited. We had a great time with party games and loads of food. The cake was made by one of Kellyns Friend's mummy ( HUGE THANKS YOU )

 Arrianna had to join in too, We took her special chair to the party so she could be comfortable and join in with her body supported. The chair is big and heavy so not easy to get around, which is why i am looking at other options for her.