Follow our Day to Day lives as we bring up a baby with Downs Syndrome. Follow our highs and lows as we fight for our baby girl to be given a normal life. yOU CAN Read about our Adventures along the Way as we live life to the Max to Give Arrianna the Best Life Possible. WERE A FAMILY ON A MISSION.
Saturday, 24 September 2011
What a totally amazing week this has been, The house has been buzzing. Each of the children have achieved something or had Fab News. Arrianna has continued to improve the use of her hands, i have now purchased some special needs toys to help gain her interest which will encourage her to develop using her hand even more. Her new toys are great and well worth buying. I am currently working out some ideas for fund raising still these are coming along nicely so watch this space, Thing take a while to sort here as i am a one man or girl band juggling 3 children. But we always get there in the end.
Sunday, 18 September 2011
This week Arrianna got to try out a Special Needs Buggy and Car Seat as you can see from the photos these will give her total support, which as a mother i feel she needs at this delicate stage of her development. however these are very expensive the buggy is over £2000 and the Car Seat is £945. So looks like we will be looking at serious fund raising any ideas, Comments or Suggestions please Message Me.
This week has been a mad week we have been dashing around all over he place with different appointments for Arrianna. She has visited our lovely physiotherapist who is very happy with her development Arrianna was given various toys to play with she loved every one and responded well to the special needs toys placed in front of her. The most remarkable thing has happend she has started to use her hands to play which is wonderful to see. She especially likes to play with Balls and shares toys with her older brother and Sister now. Unfortunately she still is unable to use her hands for eating but this will come in time.
As you can see her head control is much better and she is learning to told herself up now too, another wonderful achievement for her, Arrianna is loving to explore her world around her and she is able to communicate well too and babbles recognisable noises too. She continues to thrive which is totally fab news for all of us who love and care for her.
As you can see her head control is much better and she is learning to told herself up now too, another wonderful achievement for her, Arrianna is loving to explore her world around her and she is able to communicate well too and babbles recognisable noises too. She continues to thrive which is totally fab news for all of us who love and care for her.
Sunday, 11 September 2011
Choo Choo & Light Shows
Today Daddy Treated the Family to a day out, He took us to Llynclys Train Station, He had arranged for Kellyn and Ceienna to collect tickets and drive the train. This was Arrianna's First time on the trains, She found it very exciting, and as always added more people to her fan list.
The Staff were wonderful with the children, The driver answered Kellyns questions and was amazed by his knowledge he already had of the working of the Railways.
After the Children's experience on the Trains we headed into Oswestry here we looked in the Railway museum before headed to see the reviled Trains running along the line in town.
http://www.cambrianrailways.com/
After we visited the lime works in Llanymynech inside the Hoffman Kiln there was a light show this was great the children loved it, Fab idea.
The Staff were wonderful with the children, The driver answered Kellyns questions and was amazed by his knowledge he already had of the working of the Railways.
After the Children's experience on the Trains we headed into Oswestry here we looked in the Railway museum before headed to see the reviled Trains running along the line in town.
http://www.cambrianrailways.com/
After we visited the lime works in Llanymynech inside the Hoffman Kiln there was a light show this was great the children loved it, Fab idea.
Saturday, 10 September 2011
A Special Day
Today i witnessed something wonderful. As some of you know Arrianna chooses not to use her hands, She only uses them to grip on to someone finger, Well Today I was doing her physio with her with Muzzy lying by her side. Arrianna gripped hold of muzzy so tightly she would not let go. This was wonderful that she had decided herself to do that. Arrianna responds so well to all animals, Horses included, i have to be especially careful with her around horses as more than one occasion we have had horses lowering their head to her. It is wonderful to see Arrianna developing her own personality, She is best outdoors, Here is she happy, She watches birds and trees, It is amazing to see just how much she changes when we are out and about.
We are also lucky to have Muzzy in out family when he came to us he was so small. Ceienna was 3 months old and Muzzy was small enough to fit in her pushchair with her. As he grew he then went under the pushchair in the Shopping basket, When he was smaller while we went walking if he grew tired he would just hop into the basket, Caused Many laughs.
This Week, Arrianna and i will be spending it in various Hospital and Doctors as we have a week of appointments ahead. Currently i am fighting for her to have a more support Pushchair, She is so happy in her new Chair she has in the house and is a totally different little girl in it as she is able to have more independence She is quite high up and loves babbling away while i carry on with chores in the Kitchen. I feel it is only right she should have the same comfort and security while out and about as well, so i will keep you posted on the fight we have just begun.
We are also lucky to have Muzzy in out family when he came to us he was so small. Ceienna was 3 months old and Muzzy was small enough to fit in her pushchair with her. As he grew he then went under the pushchair in the Shopping basket, When he was smaller while we went walking if he grew tired he would just hop into the basket, Caused Many laughs.
This Week, Arrianna and i will be spending it in various Hospital and Doctors as we have a week of appointments ahead. Currently i am fighting for her to have a more support Pushchair, She is so happy in her new Chair she has in the house and is a totally different little girl in it as she is able to have more independence She is quite high up and loves babbling away while i carry on with chores in the Kitchen. I feel it is only right she should have the same comfort and security while out and about as well, so i will keep you posted on the fight we have just begun.
Thursday, 8 September 2011
Arrianna's New Chair
Arrianna now has her new Chair. This means she has more support and is more free to use her hands. What this space to See how it going to Help Her. xx
Saturday, 3 September 2011
Mums Escape Online Forum
Recently i was asked to Join Mums's Escape. This is a totally wonderful Mums Forum with lots of topics. Well presented and easy to use. you can also Find them on Facebook.
Good Luck with the Site xx
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