Friday, 30 March 2012

Bug Hunts

 The girls have been making the most of the fab weather and bug hunting. by doing this it helped to work on Arrianna's control. She loved following the ladybird as it crawled all over her arm.

Tuesday, 27 March 2012

Today has been a mad day, After spending the morning sorting out bits for Brother Kellyn we received a last minute phone call to go to another hospital we have not visited before so Arrianna could have the impressions done for her ear molds which make up part of the hearing aid. 

After dashing around doing what needed to be done we jumped in the car and headed up to Newtown Hospital, Not a very easy place to find, especially when in a hurry, but we did it, im getting used to it now, another skill you develop when your mummy to special needs children.

We didnt have to wait long and we were shown in. Arrianna was great she held her head real still and did not cry once. We chose her mold design together. cant wait for them to arrive. 

Wednesday, 21 March 2012

A New Door Opens

Back in January i made a pledge to change my life i was determined that come next Christmas i was not going to be in the same hole that i was in then. So i started a new blog Georgie's Ramblings to record my journey and also there was so much more i wanted to blog about but it was not appropriate to use Arrianna's Blog. Though we suffered a slight glitch at the beginning for the year and in February, This empowered us to move on even more.  We Now have the most wonderful new house which is mine and the children's, closing the door of our new house was wonderful it felt like had left all the bad times behind us and now we are loving life here. This is a most wonderful family home, we have so many plans and we can finally live our dreams with out worrying about anyone else. Finally we have something we have always dreamed of our very own happy family home. We are working together making it exactly how myself and the children want it. We discuss everything for the house together, its wonderful, We have never been so happy. In future this blog will be about Arrianna's development but there will be loads more on my other blog including Facts, stories, news items, reviews and anything else i find along the way. WELCOME TO OUR NEW WONDERFUL LIFE. Done forget Everyone can also follow my tweets on Twitter as i am now a regular user thesalopgirl is my twitter name. See You around watch us flying high now : )

Being Arrianna's Mummy

Today is World Downs Syndrome Day. Today is a day to Celebrate all the wonderful Characteristics of these special people.

Arrianna was born a year ago and before that i had little to do with Downs Syndrome, i was equipped with the knowledge that i had gain through studying the condition in biology at school, and spending time with children with the condition through work. but very little else. While i was pregnant i didnt know about Arrianna's condition though for most of my pregnancy i was very ill physically and mentally, which was made worse by the stress i was put under at the time, but nothing prepared me for what happened next. Arrianna was diagnosed  officially 4 days after her birth, she had been very poorly before hand and one the fight  to get better. The last year has been very interesting, we have made some wonderful friend and Arrianna has developed in her own way doing things how she wants to do them. She is a wonderful character with a personality which melts even the coldest heart, She has a cuddle for everyone she meets and those who see her regularly get dived at as she remembers those who pick her up and play with her. 

Being her mum i feel very hounoured to have been chosen to be a special mummy, every morning i go to her cot and i am greeted wit a big beaming smile, i love being her Mum i love playing and communicating with her in our own special way. 

To celebrate Downs Syndrome Awareness Day i am putting together a Special Photo Album on her facebook page take a look.

Sunday, 18 March 2012

On the Road Again

Arrianna and i have spent most of our week on the road dashing to and from appointments. But i has been a positive week.

Tuesday, Arrianna had portage for the first time, Maninly form filling, catching up and sharing toy ideas but it was a very positive meeting, We have a few areas which we need to work on to help Arrianna with her development but nothing to serious. 

Wednesday, We headed to Wrexham, Here was had an appointment with Audiology, Doing a hearing test on Arrianna is difficult because she has a short attention span and also get annoyed if she can not move about and do her own thing. However, Mainly due to the glue ear which Arrianna has had since birth, The audiologist felt she had moderate hearing loss and gave me a choice, Surgery or hearing Aids. Well Knowing the devastation that surgery can cause, and how poorly it could make her afterwards, i opted for the Hearing Aids, which she will have fitted soon. Hopefully this will help her with her development. It was a fight to get this far, as many had not believed me that Arrianna had a hearing problem, but being deaf myself to me it was plain to see. so it was in a way a minor victory for us. 

Thursday, Arrianna and i heading into Wales a bit more for the physiotherapy appointment, Arriannas therapist was amazed but how strong Arrianna has become and gave us the next stage of excises. We spent a bit of time training me on how to do them moves with her and we were given equipment to help her with this.

Thursday afternoon, we headed to Playgroup. Arrianna loves to go here, she now has many friends who love to play and cuddle her and Arrianna loves the attention. 

Well thats a bit of an update for you, We have many things going on here at the moment, hence the blog being a bit quite, will tell you more soon.