Asperger syndrome & Us

Kellyn is my Eldest Child, He is also extra special Thanks to his super intelligence. He has a wonderful Head of Knowledge, He has made an intensive study of Dinosaurs, Sharks, Titanic The Solar System and is now starting research on the Egyptian Pharaoh, Tutankhamen.   He is Currently 5 years old. He recently asked me if he could start blogging which he has, He published his first post on his finding so far, This was thought out and typed himself, He even found the pictures too, using Google.

Kellyn is showing most symptoms of aspergers syndrome, This is a form of autism. Though Kellyn and i have worked hard to bring his symptoms under control occasionally, luckily we both now have the experience of knowing how to hand this. We have a wonderful bond together and we spend lots of time talking feelings and problems through.

With Kellyn's brain working the way it does this means that even though he enjoys attending school now, He still needs more work to do at home to satisfy his passion to learn.This has meant we has begun Home Education once again, But this is shared with school, I work very closely with school now to make sure Kellyn is always 100% happy.

I love doing this work with Kellyn, i also give Ceienna the same work at a lower level too. Its wonderful to help my son controlling his condition, He is undergoing tests at the moment to find the answers, but what ever they turn out to be Kellyn will always continue to amaze though he meets with his outstanding knowledge. Our House is fast becoming a home of Learning, Education and research as i am currently doing a university course myself, for filling a dream and a promise i made to myself when i was pregnant with Arrianna. Watch this space for More Blogs By Kellyn Coming Very Soon.

Below is an Easy Read Link about the Condition: http://www.autism.org.uk/about-autism/autism-and-asperger-syndrome-an-introduction/what-is-asperger-syndrome/what-is-asperger-syndrome-easy-read.aspx

Diet and Meal Planning

Recently i spent alot of time reserching food for Arrianna. Arrianna needs a diet which will give her a high iron intake. its been a long time since i studied Food n this way and little did i know when i took my last course that i would be using my knowledge and High Qualifications to Help my Special Little girl have a specially designed diet. Using various books i gained the knowledge i needed but i thought i would recommend this to anyone going through the same thing.

This has information recipes and meal planners inside plus a whole lot more. It is also written in a way which you can understand. 

Highly Recommended. 

Living with Downs Syndrome 9 Months on

Arrianna is now 9 months old, so i was keen to see where Arrianna's development is taking into consideration, What a typical child would be expected to be achieving by now and what a baby with Downs Syndrome is expected to be doing. But in researching, i thought it would be good for our followers to be taken right back to the beginning.

• small head (microcephaly)
• flat face
• upward slanted eyes
• single deep crease across the palm of hand, and short fingers
• wide space between the big toe and second toe
• hypotonia (low muscle tone)
• mouth tends to stay open with tongue sticking out

Listed above are some symptoms of Downs Syndrome. 


Arrianna has most of the above symptoms, But she does not let it bother her. She is thriving. She tries everything. Arrianna has a very attentive family around her who will bring her on leaps and bounds. Ceienna plays with her, They very often play shops or cafe's, which is wonderful to see. When playing shops Arrianna is the shop keeper and bashes at the till, Great fun. We are current waiting for a special needs chair which will allow Arrianna to play sitting up, Currently she lies on a cushion on the floor as she still has no upper body strength to support herself nor has she any balance.  Arrianna, also enjoys drawing and painting i have brought her a sketch book to keep her creations in as some really are very cleaver especially for a baby of now 9 months. 


Kellyn loves to read with Arrianna, he lies with her reading book after book to her, as well as sharing his knowledge of her various topics. 


Together we love to sing and dance, We make music, Arrianna especially loves bells. 


Meals times are great fun too as we come to the table as a family to eat and share our day, Arrianna always has a story to tell to, or a comment to make. She is very much part of us. 


The Downs Syndrome is never far away and we never know how it will effect her. As winter draws in this may well make Arrianna poorly, and in deed her off days are currently more frequent. We face a daily battle with her temperature as when she is cold her limbs go blue, but she does not like to have blankets or socks on. Her character and stubbornness is already shining through but as well as this she has determination, Arrianna loves to try out new things and will try to do What Kellyn and Ceienna are doing.  At the moment we have few appointment but in February these will all be starting once again, I am filled with excitement as we prepare to celebrate Arrianna's first year, but sad that i will be seeing my little girl lying in a hospital bed, again. This is the life ahead of us now, but i know that Arrianna will make the most of her life and enjoy ever minute of it. As she goes on Arrianna will make a huge difference to so many people, Already she is known for her beautiful smile. When were go out we see people stair at her, If Arrianna see's them she smiles and laughs which usually brings them over to us and they will always walk away with a wonderful smile themselves, Which is why i see Arrianna as a Beautiful Angel set to us to brighten everyone's world who comes into contact with her.  She sure is a very Special gift, i am so proud of her as i am of all my children. Life is sure going great right now and i know nothing nor no one will ever take that away from us know, Our hearts are full of Joy and happiness and float like balloon int he sky. How Lucky Are WE ????? A Very Gifted Family xxx

Tutankhamen the Boy king- by kellyn mchugh

This is a picture of  Tutankhamen death mask.

Tutankhamen lived From 1346 bc to  1328bc

Tutankhamen was a king of Egypt, he became king when he was 9 year old. He was king for 10 years.
When he died he was made into a Mummy. and buried in a Pyramid with lots of treasures.

Tutankhamen s tomb was discovered in 1922 by Henry Carter. 

Knowsley Safari Park.

 As Part of Ceienna's Birthday we headed to Knowsley Safari Park today. We especially liked the Lions and the Baboons. We managed to get out car through in one piece,lol, Just.

3 Today, Where Has the Time Gone Big Sister

Today our family celebrated Ceienna's 3rd Birthday. Its been a day of fun and laughter. The Children went to School in their Pajamas to raise money for  Children in Need they thought this was great. We then picked Ceienna up and took her out and about for while Keeping a promise to Kellyn that we would wait for him to get home from school before we did anything. After Collecting Kellyn we got home the house was decorated with Balloons and Banners for our special princess. She got in and her presents where piled high on the Kitchen Table. She opened them all having great fun. We were soon joined by other family members and the real fun began having birthday tea and playing on the wii.

Ceienna has amazed me since Arrianna was born in February she has taken to having a baby sister well and is very proud to show her off. When she is not at Nursery Ceienna is always keen to help Arrianna, She is always willing to take part in Arrianna's Physio routine and to play with her special sister. Ceienna will often encourage Arrianna to explore new toys and shows her how to play with them. Ceienna also loves to share books with Arrianna, All this is sure a big help to Arrianna.

Though Ceienna is only 3years old she has a fine head on her shoulders she can fluently use two languages English and Welsh. . She is also learning Makaton and doing well with this too. She knows her alpherbet and can count in English and Welsh right up to 20. She is very stub-on and has been known to out whit the most experienced folk out there.

I just look forward to the future with my Children, Watch this space.

We Did It !!!!!!!!!!!! 8 Months Update.

 After months of work. Arrianna has now moved on to being able to put food in her mouth on her own. It has took months of work to teach Arrianna how to put food in her mouth and to get the co ordination right to put food in her mouth but we have now done it. With Arrianna having no natural instinct she has to be taught the most basic of things. She has to be constantly kept a close eye on now as she does not realize when she is pushing something to far into her mouth and choking herself, but still we will get round this given time.  Its lovely to see her determination to succeed when she has her mind set on doing something.

Arrianna is still attending Physio and we are doing daily exercises with her to help build up her strength this is paying off and our next goal is for her to sit up unaided.

Arrianna loves music and responds well to it. I have brought her some musical instruments which she loves to play with as some lights which respond to sound again she loves.

I have started to put lots of updates on her facebook page ( See Links on the side ) to its well worth joining, Arrianna is getting quite a little fan club together.