Today has been a mad day, After spending the morning sorting out bits for Brother Kellyn we received a last minute phone call to go to another hospital we have not visited before so Arrianna could have the impressions done for her ear molds which make up part of the hearing aid. 


After dashing around doing what needed to be done we jumped in the car and headed up to Newtown Hospital, Not a very easy place to find, especially when in a hurry, but we did it, im getting used to it now, another skill you develop when your mummy to special needs children.


We didnt have to wait long and we were shown in. Arrianna was great she held her head real still and did not cry once. We chose her mold design together. cant wait for them to arrive. 

A New Door Opens

Back in January i made a pledge to change my life i was determined that come next Christmas i was not going to be in the same hole that i was in then. So i started a new blog Georgie's Ramblings to record my journey and also there was so much more i wanted to blog about but it was not appropriate to use Arrianna's Blog. Though we suffered a slight glitch at the beginning for the year and in February, This empowered us to move on even more.  We Now have the most wonderful new house which is mine and the children's, closing the door of our new house was wonderful it felt like had left all the bad times behind us and now we are loving life here. This is a most wonderful family home, we have so many plans and we can finally live our dreams with out worrying about anyone else. Finally we have something we have always dreamed of our very own happy family home. We are working together making it exactly how myself and the children want it. We discuss everything for the house together, its wonderful, We have never been so happy. In future this blog will be about Arrianna's development but there will be loads more on my other blog  http://georgiesramblings.blogspot.co.uk/ including Facts, stories, news items, reviews and anything else i find along the way. WELCOME TO OUR NEW WONDERFUL LIFE. Done forget Everyone can also follow my tweets on Twitter as i am now a regular user thesalopgirl is my twitter name. See You around watch us flying high now : )

Being Arrianna's Mummy

Today is World Downs Syndrome Day. Today is a day to Celebrate all the wonderful Characteristics of these special people.

Arrianna was born a year ago and before that i had little to do with Downs Syndrome, i was equipped with the knowledge that i had gain through studying the condition in biology at school, and spending time with children with the condition through work. but very little else. While i was pregnant i didnt know about Arrianna's condition though for most of my pregnancy i was very ill physically and mentally, which was made worse by the stress i was put under at the time, but nothing prepared me for what happened next. Arrianna was diagnosed  officially 4 days after her birth, she had been very poorly before hand and one the fight  to get better. The last year has been very interesting, we have made some wonderful friend and Arrianna has developed in her own way doing things how she wants to do them. She is a wonderful character with a personality which melts even the coldest heart, She has a cuddle for everyone she meets and those who see her regularly get dived at as she remembers those who pick her up and play with her. 

Being her mum i feel very hounoured to have been chosen to be a special mummy, every morning i go to her cot and i am greeted wit a big beaming smile, i love being her Mum i love playing and communicating with her in our own special way. 

To celebrate Downs Syndrome Awareness Day i am putting together a Special Photo Album on her facebook page take a look.

On the Road Again

Arrianna and i have spent most of our week on the road dashing to and from appointments. But i has been a positive week.


Tuesday, Arrianna had portage for the first time, Maninly form filling, catching up and sharing toy ideas but it was a very positive meeting, We have a few areas which we need to work on to help Arrianna with her development but nothing to serious. 


Wednesday, We headed to Wrexham, Here was had an appointment with Audiology, Doing a hearing test on Arrianna is difficult because she has a short attention span and also get annoyed if she can not move about and do her own thing. However, Mainly due to the glue ear which Arrianna has had since birth, The audiologist felt she had moderate hearing loss and gave me a choice, Surgery or hearing Aids. Well Knowing the devastation that surgery can cause, and how poorly it could make her afterwards, i opted for the Hearing Aids, which she will have fitted soon. Hopefully this will help her with her development. It was a fight to get this far, as many had not believed me that Arrianna had a hearing problem, but being deaf myself to me it was plain to see. so it was in a way a minor victory for us. 


Thursday, Arrianna and i heading into Wales a bit more for the physiotherapy appointment, Arriannas therapist was amazed but how strong Arrianna has become and gave us the next stage of excises. We spent a bit of time training me on how to do them moves with her and we were given equipment to help her with this.


Thursday afternoon, we headed to Playgroup. Arrianna loves to go here, she now has many friends who love to play and cuddle her and Arrianna loves the attention. 


Well thats a bit of an update for you, We have many things going on here at the moment, hence the blog being a bit quite, will tell you more soon. 

Happy 1st birthday princess

This weekend we have celebrated arrianna's birthday, she had a lovely tea party at home with family and friends on Saturday and today we have been out and about having lots of fun with big bro and big sis.

Big thank you to everyone for presents cards and messages wishing arrianna a happy birthday big hug to you all. Arrianna loved all her presents.

I Get it Mum : )

Well what a week I spent 2 days away from my wonderful children this week as i headed off to do a makaton course, The hardest thing was to walk through the door with out my precious baby in my arms, to tell the truth i was lost, poor Duke was standing at the car door waiting to be let in, and after a little persuasion was lead back into the house sad eyes looking at me.Driving off leaving my family behind was the hardest part of the next 2 days. I then started an intensive course training in Makaton, I loved every minute We were taught many signs as well teaching the signs and how to use Makaton symbols to help children with learning difficulties to learn to read. Amazing.

After my training and i was back with my wonderful little girl, we were playing with a jigsaw, it was an alperbet jigsaw and i was showing her the signs for those letters. Arrianna was taking everything in and looking at her hand trying to copy. After a while she not only learnt to stick up her thumb for her name but she was also trying to place the jigsaw pieces in the holes. I was amazed. Not bad for a an 11 month old little girl, who when born was told she will take years before she will be able to do anything. I was so chuffed with her.

It is hard to believe Arrianna is now 11 months old. I look at her with Pride in my Heart she is wonderful. She smile, Her happiness is contagious, She has a Routine from the Minute she wakes to the second she sleeps at night. My totally perfect baby girl. We are having a few problems with the cold, it is effecting Arrianna, making her hands and feet turn blue, i spent the weekend just gone trying to find her Hat and gloves and anything else that will protect her, Apart from this she is doing so well, She eats well though she has to be constantly observed because she chokes very easily, Arrianna is always very excited at meal times, Though i am still breastfeeding her she is also having Formula Milk, At the moment we are investigating why she has an intollarence or certain milk. As a Mum i know my daughter, i Know her needs, i know what suits her and what doesn't, I along with many other parents who are currently in my position and those who have been here in the past, We all have one Request to professionals PLEASE LISTEN TO US AS PARENTS, WE SPEND 24 HOURS 7 DAYS A WEEK WITH OUR CHILDREN, OUR VIEWS NEED TO BE HEARD AND RESPECTED.